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Millions of Women Suffer From This Ignored Disease

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Millions of Women Suffer From This Ignored Disease

Newser on Yahoo
September 28, 2015

In this May 11, 2015, file photo, Susan Sarandon arrives at The Theatre at Ace Hotel in Los Angeles. (Image via Richard Shotwell/Invision/AP, File)

Susan Sarandon, Whoopi Goldberg, Padma Lakshmi, and another 176 million women suffer from an often painful, debilitating disease that few people have heard of — including primary care doctors.

It’s estimated that one woman in 10 of reproductive age have endometriosis, a disease that occurs when tissue similar to the lining of the womb is found elsewhere in the body — like in the abdomen, ovaries, bladder, and bowel — and bleeds every month, reports the Guardian.

Though some have no symptoms, others complain of pain so severe that they pass out. It isn’t just physically painful: Women report the disease can ruin relationships because sex is painful; cause them to lose their jobs at a cost of $80.4 billion a year in the US, where 7.6 million women are affected; and may be responsible for almost half of all unexplained infertility, according to a 2008 study. Charity Endometriosis UK says a survey of its members showed 25 percent had felt suicidal because of the disease.

Even getting a diagnosis is difficult. 

Doctors are often unaware of the disease, while specialists are often ill-informed. That means women can suffer for years before the disease is confirmed through a laparoscopy, a keyhole surgery. One woman who’s had endometriosis since age 11 says doctors initially ignored her complaints, getting a diagnosis took a decade, and now, at 33, she’s still struggling to find the right treatment.

While some women take painkillers, some “do very well with very good surgery, but unfortunately that surgery is as specialized as cancer surgery,” or more so, says an expert. 

Researchers are investigating the genome of women with the disease and say about 50 percent of endometriosis is inherited, but funding is “a major scandal,” the expert adds. Less than $1 per patient goes toward endometriosis research in the US each year. (Another study finds that women may be more vulnerable to Alzheimer’s.)

By Arden Dier

Speaking from my own experience, I was diagnosed with endometriosis many years ago, and had a D & C (Dilation and Curettage), a procedure to remove tissue from inside your uterus.  Years later I had a hysterectomy, and wonder if the endometriosis returned and caused the non-stoppable bleeding.


"Time is too slow for those who wait; too swift for those who fear;

too long for  those who grieve; too short for those who rejoice.

But for those who love, time is eternity."

(Jane Fellowes)

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